| dc.description.abstract |
Informed consent in biorepository-based research is a highly debated issue in the
scientific community. Unlike one-time consent for a specific study, broad consent is required for
future use of biospecimens. However, providing sufficient information about future research poses
ethical challenges, making informed consent complex. Additionally, the use of complex procedures
and terminology can make it difficult for individuals to fully comprehend the scope of their consent.
As a result, the question of whether informed consent can be considered valid is a contentious and
multifaceted issue. Given the significant increase in genomics and biorepository-based studies in
Ethiopia, it is crucial to gain insight into the perspectives and experiences of researchers, sample
donors, ethics committees, and other stakeholders involved in biorepositories. |
en_US |